Quebec Metastatic Breast Cancer Registry

Quebec Metastatic Breast Cancer Registry

Initiated by its Scientific Committee, and under the leadership of Dr. Sarkis Meterissian, the McPeak-Sirois Group set up the first Quebec Metastatic Breast Cancer Registry, which benefits from the full support of the Ministère de la Santé et des Services sociaux (MSSS) as well as of the Direction nationale du Programme québécois de cancérologie.

The mission of the Registry

Our mission is to develop a metastatic breast cancer research infrastructure in Quebec to support projects that will lead to a better understanding of the disease and eventually to an optimization of clinical practice.

Hospitals participating in the Registry

The project was launched in 2021 as a pilot project with three member hospitals of the McPeak-Sirois Group, namely the McGill University Health Centre, the Centre hospitalier de l’Université de Montréal and the CHU de Québec-Université Laval. In the course of 2022, all the other hospitals in Quebec will be able to contribute to the Registry project.

How the registry works

The Registry is a database that collects information on cases of metastatic breast cancer in Quebec from information contained in the local databases of each of the participating hospitals. The Registry contains non-identifying (coded) clinical and demographic data of consenting individuals and is intended to support future research projects in this population. It also aims to identify the current treatments of these patients, their evolution in terms of response to treatments as well as their survival and, ultimately, to optimize clinical practice by improving the care provided.

Participants are recruited at the member hospitals of the Group that take part in the Registry project. Participants have a metastatic disease or a locally advanced cancer that does not allow surgery, are over 18 years old at the time of diagnosis and are competent to give their consent (within the meaning of the law).

Recruitment goal

The project intends to recruit all persons who will be diagnosed with metastatic breast cancer. Approximately 6,600 new cases of breast cancer are declared each year in Quebec and approximately 20% of these cancers will evolve to metastatic disease.

Registry partners

The Registry is an initiative of the McPeak-Sirois Group for clinical research in breast cancer which is supported by the following partners: